Data Governance - Test

how to manage data value

Kitchen sink

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About Data Governance

Data Governance as a part of HBP Ethics and Society aims at managing the availability, quality, security, integrity, and compliance of data in research and innovation.

It is about using the right People, Processes, and Technology (the PPTs) to ensure that the value of data is fully maximised while the rights of data subjects are respected.

This tool addresses the technical, ethical, legal, and societal challenges involved in data processing workflows, so they are kept technically efficient, ethically sound, legally compliant, and socially acceptable.

Meet Professor Martinez

Professor Martinez is professor within Functional Magnetic Resonance Imaging, focusing on alterations in brain function for a population of Alzheimer’s disease patients. However, the evolving possibilities of de-identification, endangers the usual anonymisation techniques. So how can the privacy of their data subjects best be protected?

Watch the video and consider how you would proceed if you were Professor Martinez.

The Data Governance Quiz

Every research project will handle data in some manner or form, and so it’s important that you consider the issues and challenges which the handling of that data can raise. The processes, responsibilities, and technologies you use to handle those data comprise a data governance structure.

Further capacity development and the EBRAINS community space

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Acknowledgements:

Thank you to Will Knight, Simi Akintoye and Damian Okaibedi Eke for your contributions to the text, video-script and quiz on Data Governance.